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BEGIN:VEVENT
UID:fa37aa05a02c4d652357cb36a0527cf1
CATEGORIES:Altri eventi
CREATED:20201116T110902
SUMMARY:Vite di Sibling - Conoscere e capire chi vive e cresce con un fratello raro
LOCATION:On line - Omar
DESCRIPTION:<p><span style="background-color: initial;">Dare voce a migliaia di sorelle
  e fratelli che quotidianamente affrontano le problematiche legate alle mal
 attie rare, spesso in completa solitudine, è l’obiettivo del Progetto “Rare
  Sibling” dell’Osservatorio Malattie Rare. Si propone come un punto di inco
 ntro, aggregazione, confronto e scambio di esperienze tra sibling di ogni e
 tà. L’obiettivo è conoscerne i bisogni, elaborare soluzioni e far conoscere
  questi ragazzi attraverso lo storytelling.&nbsp;</span>Durante l’evento sa
 rà presentata la pubblicazione “Gli Equilibristi. Come i Rare Sibling vivon
 o le malattie rare” realizzata da OMAR.</p><p>Info <a href="https://www.oss
 ervatoriomalattierare.it/appuntamenti/16639-19-novembre-2020-vite-di-siblin
 g-conoscere-e-capire-chi-vive-e-cresce-con-un-fratello-raro" target="_blank
 " style="color: #339966" rel="noopener noreferrer">qui</a>.</p>
DTSTAMP:20260717T182617
DTSTART;TZID=Europe/Rome:20201119T100000
DTEND;TZID=Europe/Rome:20201119T120000
SEQUENCE:0
TRANSP:OPAQUE
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